Past studies
Find information about previous studies with BPSU over its history. This includes the key findings, as well as any publications associated with the study. These display in order of the study's start date, and you can use the filter to find by category or start date.
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Rapid-onset obesity with hypoventilation, hypothalamic dysfunction and autonomic dysregulation
Surveillance of Rapid-onset obesity with hypoventilation, hypothalamic dysfunction and autonomic dysregulation (ROHHAD) is to commence in November 2024 led by Dr Katherine Hawton. The study will help to estimate how many children have ROHHAD, understand more about the condition and how it is being managed.
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Congenital and hospitalised neonatal varicella
BPSU surveillance of fetal varicella syndrome (FVS) and neonatal varicella commenced with the June 2023 card. It is conducted by the UKHSA and led by Dr Gayatri Amirthalingam, and studies how many babies have FVS or neonatal varicella, the features of the diseases, the treatments babies receive and the outcomes of their disease. It aims to understand FVS and neonatal varicella in order to guide decisions about chicken pox vaccination, and to guide the treatment of these conditions. A parallel study is conducted in Portugal.
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Near fatal asthma
BPSU surveillance of near fatal asthma in children and young people in UK and Republic of Ireland commenced with the October 2022 reporting card. The study aims to describe the frequency, risks factors, clinical care and future asthma risk of children and young people (aged 5-15 years) experiencing a Delphi-defined near fatal asthma attack. Led by Professor Steve Cunningham.
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Acute hepatitis
BPSU surveillance of acute hepatitis in children 2022 commenced in May 2022 collecting cases seen from January 2022 onwards. This study aims to understand viral, non-viral or unidentified causes of this apparent increase in cases of acute hepatitis reported to the UKHSA. Led by Dr Ifeanyichukwu Okike.
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Neonatal stroke presenting/diagnosed in the first 90 days of life
The study was led by Tizard bursary winner Dr T’ng Kwok and will provide a current description of neonatal stroke including the associated factors, management and outcomes. By exploring how babies with neonatal stroke present and are cared for, future studies looking at prevention and new treatment options can be better designed.
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Button battery ingestion, inhalation or insertion
BPSU surveillance of the unintentional ingestion, inhalation or insertion of button batteries in children requiring removal or attempted removal commenced in February 2021. This study will help inform services for the prevention and treatment of children who have accidentally swallowed or choked on button batteries. The study is being led by Dr Bob Basu, winner of the Sir Peter Tizard Bursary 2016-17.
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Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO)
Surveillance of chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO) commenced in October 2020. It is being led by Dr Chenqu Suo, winner of the Sir Peter Tizard Bursary 2018-19. This study intends to find out how common CRMO/CNO is, and who is involved in the care of CRMO/CNO patients. This will help to guide planning in healthcare services. Moreover, by looking at the existing treatments patients receive and their outcome, the study will allow us to understand the different treatments being used across the country, the short-term outlook, and complications.
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Conservative care in end-stage kidney disease
This surveillance study commenced in September 2020. This study aims to identify children with ESKD who receive conservative care, to understand how the decision not to start renal replacement therapy is made and important factors that are considered in this decision-making process.
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Glucocorticoid induced adrenal suppression
BPSU surveillance of outcome of symptomatic glucocorticoid induced adrenal suppression commenced in September 2020. This study will estimate how many people are presenting to healthcare providers with adrenal suppression causing symptoms because of them currently or previously taking glucocorticoid medication; describe the characteristics of these patients; find out whether healthcare management differs from established guidelines; and see if there are identifiable factors in health professional or family practice that might prevent these patients from becoming unwell or reduce the severity of their illness in future.
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Multisystem inflammatory syndrome, Kawasaki disease and toxic shock syndrome
Surveillance of multisystem inflammatory syndrome commenced in 2020. The aim was to understand the incidence, presenting features, laboratory features, management, clinical course and the outcome of this potentially new syndrome characterised by hyperinflammation which is temporally associated with COVID-19. A better understanding of the illness will help improve the way we look after such children and may lead to new treatment and prevention strategies in the future.
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Neonatal complications of coronavirus disease (COVID-19)
Surveillance of the neonatal complications of coronavirus disease (COVID-19) commenced in March 2020. The study aims to find out how many babies develop coronavirus infection in the first month after birth, and how many babies born to women with coronavirus need neonatal care; describe which babies develop COVID-19 infection and what symptoms or signs they have; and describe how COVID-19 in babies is identified and treated.
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Herpes simplex virus
BPSU surveillance of neonatal herpes simplex virus disease in infants less than 90 days of ages commenced in July 2019 and will run for 4.5 years. This study will assess the current disease burden of HSV to inform future practice on detection, prevention and management of this dangerous disease.
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