BPSU: Surveillance of rare childhood disease
The BPSU is a leading centre for rare paediatric disease surveillance across the UK and Republic of Ireland. Since 1985, we have enabled researchers to study more than 130 conditions and publish over 300 peer-reviewed papers, generating evidence that improves understanding of rare childhood diseases.
See all past and current studies-
Reporting a case
Paediatricians across the UK and Republic of Ireland are invited to take part in the BPSU eReporting scheme. Each month, you’ll receive an eCard asking whether you’ve seen any cases of conditions under surveillance. Please look out for your eCard at the start of each month.
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Run your own study
Guidance for clinicians and researchers who want to conduct national surveillance studies through the BPSU, including eligibility, application process, patient and public involvement, and bursary opportunities.
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Our impact
Since 1985 we have facilitated research on over 100 rare conditions, influencing decisions on these diseases and their impact on children. Find out about our impact in health policy, clinical practice and health management, and research and education, plus access our webinar recordings.
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