BPSU: Surveillance of rare childhood disease
Welcome to our new website! We are a leading centre for rare paediatric disease surveillance in the UK and Republic of Ireland. Since 1985 we have enabled researchers to study over 130 conditions and publish more than 300 peer-reviewed papers.
See all past and current studies-
Reporting a case
Paediatricians across the UK and Republic of Ireland are invited to take part in the BPSU eReporting scheme. Each month, we send an eCard by email asking clinicians to confirm whether they have seen any cases of the rare conditions currently under surveillance. If a case is reported, study investigators may follow up with additional questions. Please look out for your eCard at the beginning of each month.
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Run a study with the BPSU
Guidance for clinicians and researchers who want to conduct national surveillance studies through the BPSU, including eligibility, application process, patient and public involvement, and bursary opportunities.
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Our impact
Since 1985 we have facilitated research on over 100 rare conditions, influencing decisions on these diseases and their impact on children. Find out about our impact in health policy, clinical practice and health management, and research and education, plus access our webinar recordings.
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