Reporting a case

Paediatricians across the UK and Republic of Ireland are invited to take part in the BPSU eReporting scheme. Each month, you’ll receive an eCard asking whether you’ve seen any cases of conditions under surveillance. Please look out for your eCard at the start of each month.

Sign up to receive our eReporting card

If you are a paediatrician in the UK or Republic of Ireland, with an active caseload and working at consultant or SAS level, complete our quick form to get the eReporting card (or 'orange card'). Each month you will be invited to report any or no cases of rare diseases that we are currently studying.

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How to use the BPSU platform

Our data collection platform to report BPSU cases is easy to use. This page has a video walk through and some frequently asked questions (FAQs). We email all BPSU participants around the 1st of each month to report on any cases, or no cases, on current studies.

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Current studies and reporting instructions

Here you will find the case definition for each study now on the BPSU eReporting card. You will also find downloadable reporting instructions for each month.

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