How to report cases
Paediatricians across the UK and Republic of Ireland are invited to take part in the BPSU eReporting scheme. Each month, we send an eCard by email asking clinicians to confirm whether they have seen any cases of the rare conditions currently under surveillance. If a case is reported, study investigators may follow up with additional questions. Please look out for your eCard at the beginning of each month.
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Sign up to receive our eReporting card
If you are a paediatrician in the UK or Republic of Ireland, with an active caseload and working at consultant or SAS level, complete our quick form to get the eReporting card (or 'orange card'). Each month you will be invited to report any or no cases of rare diseases that we are currently studying.
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Reporting instructions for current studies
Here you will find the case definition for each study now on the BPSU eReporting card. You will also find downloadable reporting instructions for each month.
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Current studies on the eReporting card
On this page you will find more information about the current studies on our eCard and downloadable information such as patient and public information leaflets and protocol cards.
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How to report to the BPSU data collection platform
Our data collection platform to report BPSU cases is easy to use. This page has a video walk through and some frequently asked questions (FAQs). We email all BPSU participants around the 1st of each month to report on any cases, or no cases, on current studies.
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Current studies in follow up
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