Fetal Alcohol Syndrome
Surveillance of Fetal Alcohol Syndrome (FAS) commenced in October 2018. The study aimed to determine the incidence of FAS in the UK and Ireland; investigate which services are accessed by babies and children affected by the condition; and raise awareness about FAS among clinical practitioners.
Overview
Fetal Alcohol Syndrome (sometimes known as FAS) is a rare condition which occurs when the developing baby is exposed to alcohol in the womb. Alcohol can cross the placenta into an unborn baby’s blood stream.
The exposure of an unborn baby to alcohol can then affect the development of the brain, leading to challenges in learning and development. Alcohol can also affect the development of other parts of the unborn baby’s body, particularly the face. The exact amount of alcohol that cause FAS is unknown but FAS can be completely prevented by avoiding the use of alcohol in pregnancy.
In addition to the specific effects on growth, brain and facial development, babies and children affected by FAS can sometimes have:
- hearing problems
- speech problems
- seizures (fits)
- liver problems
- kidney problems
- heart defects
In the UK and Ireland we currently know little about the exact numbers of babies and children affected by FAS and the services they require to support them throughout their childhood. The aim of the study is to answer both these questions and ultimately improve the treatment and support we can provide to babies, children and families affected by FAS.
Published paper
McGhee KA, Sturrock RD, Fryer AA, et al. Fetal alcohol syndrome in the UK. Arch Dis Child. 2008;93(9):732–737. doi:10.1136/adc.2007.126631.
Investigators
Dr Kathryn Johnson
Leeds General Infirmary
Great George Street
Leeds LS1 3EX
Email: leedsth-tr.bpsu.fas@nhs.net
Duration
October 2018 – October 2019