Past studies
Find information about previous studies with BPSU over its history. This includes the key findings, as well as any publications associated with the study. These display in order of the study's start date, and you can use the filter to find by category or start date.
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Langerhans Cell Histiocytosis (LCH)
The surveillance of Langerhans Cell Histiocytosis (LCH) took place from June 2003 to May 2005. There had been few large multi-centre studies of LCH, and there was poor documentation of its epidemiology. The study aimed to describe the epidemiology of LCH in the UK and Ireland as well as variations between ethnic groups and regions. It also aimed to assess the presenting features, the interval between LCH symptoms and diagnosis, referral patterns and outcome for the disease.
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Thrombosis in childhood
At the time of this surveillance study, symptomatic thrombotic events (venous and arterial) were rare in childhood, particularly after the neonatal period, and the incidence in the United Kingdom was unknown. The study objectives were as follows: to determine the incidence and epidemiology of thrombosis in children aged between 1 month and 16 years in the UK, determine which risk factors predispose to thrombosis in childhood, and in particular, the role of thrombophilia, both inherited and acquired, determine diagnostic and therapeutic practices for childhood thrombosis and assess whether sufficient information was available on which to develop management guidelines.
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Haemophagocytic lymphohistiocytosis (HLH)
The study aimed to establish epidemiological data in the absence of other data from the United Kingdom, improve awareness and diagnosis and advise on the management.
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