Subacute sclerosing panencephalitis 1 (SSPE)
To monitor of incidence of Subacute sclerosing panencephalitis.
Lead investigator
Dr Christine Miller
About the study
From 1970 to 1980 the register depended on voluntary notification of cases by paediatricians and neurologists, laboratory reports to the Communicable Disease Surveillance Centre (CDSC) of the Public Health Laboratory Service (England and Wales), and copies of death certificates from the Office of Population, Censuses and Surveys (OPCS). From 1980 active surveillance was added with biennial postal enquiry from CDSC to all paediatricians and neurologists. From 1986 monthly enquiries through the British Paediatric Surveillance Unit9 replaced the CDSC postal enquiry to paediatricians.
Duration
June 1986 – July 1994
Published papers
Development of a dual target PCR for detection and characterization of measles virus in clinical specimens; Jin L, Richards A, Brown DWG; Molec and Cell Probes 1996;10:191-200
The epidemiology of subacute sclerosisng panencephalitis in England and Wales 1990-2002; Miller C, Andrews N, Rush M, Munro H, Jin L, Miller E; Arch Dis Child. 2004;89(12):1145-8
BPSU Ninth Annual Report 1994
Advice/Support Group
Encephalitis Society
Web: https://www.encephalitis.info Email: mail@encephalitis.info