Our impact
Since 1985 we have facilitated research on over 100 rare conditions, influencing decisions on these diseases and their impact on children. Find out about our impact in health policy, clinical practice and health management, and research and education, plus access our webinar recordings.
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Health policy
BPSU surveillance data has influenced immunisation and screening policy, altered clinical practice, and informed health service configuration.
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Clinical practice and health management
Findings from several BPSU studies have gone on to influence changes in national service provision, informed the development of national published guidelines, and changes to the UK Child Screening and Surveillance Programme.
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Research and education
The BPSU continues to disseminate its findings from research studies in a variety of ways. This has included research publications, e-Bulletins, and webinars.
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