Past studies
Find information about previous studies with BPSU over its history. This includes the key findings, as well as any publications associated with the study. These display in order of the study's start date, and you can use the filter to find by category or start date.
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Rapid-onset obesity with hypoventilation, hypothalamic dysfunction and autonomic dysregulation
Surveillance of Rapid-onset obesity with hypoventilation, hypothalamic dysfunction and autonomic dysregulation (ROHHAD) is to commence in November 2024 led by Dr Katherine Hawton. The study will help to estimate how many children have ROHHAD, understand more about the condition and how it is being managed.
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Congenital and hospitalised neonatal varicella
BPSU surveillance of fetal varicella syndrome (FVS) and neonatal varicella commenced with the June 2023 card. It is conducted by the UKHSA and led by Dr Gayatri Amirthalingam, and studies how many babies have FVS or neonatal varicella, the features of the diseases, the treatments babies receive and the outcomes of their disease. It aims to understand FVS and neonatal varicella in order to guide decisions about chicken pox vaccination, and to guide the treatment of these conditions. A parallel study is conducted in Portugal.
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Near fatal asthma
BPSU surveillance of near fatal asthma in children and young people in UK and Republic of Ireland commenced with the October 2022 reporting card. The study aims to describe the frequency, risks factors, clinical care and future asthma risk of children and young people (aged 5-15 years) experiencing a Delphi-defined near fatal asthma attack. Led by Professor Steve Cunningham.
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Acute hepatitis
BPSU surveillance of acute hepatitis in children 2022 commenced in May 2022 collecting cases seen from January 2022 onwards. This study aims to understand viral, non-viral or unidentified causes of this apparent increase in cases of acute hepatitis reported to the UKHSA. Led by Dr Ifeanyichukwu Okike.
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Neonatal stroke presenting/diagnosed in the first 90 days of life
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Button battery ingestion, inhalation or insertion
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Chronic recurrent multifocal osteomyelitis/ chronic nonbacterial osteomyelitis (CRMO/CNO)
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Conservative care in end-stage kidney disease
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Glucocorticoid induced adrenal suppression
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Listeria infection in infants
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Insulin dependent diabetes mellitus in under-fifteens (Childhood onset diabetes)
This study focused on establishing the incidence rates for both the transient and permanent forms of neonatal diabetes (information which is not available from the literature). In addition, they hoped this study would allow comparisons between the clinical, physiological and genetic characteristics of the children presenting with these two conditions.
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Galactosaemia
Ascertainment of cases of classical galactosaemia over a three year period in the UK and the Republic of Ireland
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